tag:blogger.com,1999:blog-6174710622317551984.post1353896664796675290..comments2022-06-05T02:16:01.970-06:00Comments on Adventures in Occipital Nerve Stimulation: Damage AssessmentBannerhttp://www.blogger.com/profile/10411396685109840881noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-6174710622317551984.post-59531811457449672692009-07-08T13:24:45.477-06:002009-07-08T13:24:45.477-06:00There really isn't anything to show on the bac...There really isn't anything to show on the back of my neck. They didn't do anything back there. The wires go in on the sides of my head, above my ears, then they are tunnelled down the sides of my neck and across my chest to the battery.Bannerhttps://www.blogger.com/profile/10411396685109840881noreply@blogger.comtag:blogger.com,1999:blog-6174710622317551984.post-33914831798069729902009-07-07T09:58:13.373-06:002009-07-07T09:58:13.373-06:00Feeling any better? Do you have pics of the back o...Feeling any better? Do you have pics of the back of your neck?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6174710622317551984.post-2652563619843681092009-06-21T09:26:52.725-06:002009-06-21T09:26:52.725-06:00Anonymous--Sorry I took so long to respond...I was...Anonymous--Sorry I took so long to respond...I was traveling back home during the last few days.<br /><br />Dr. Suwan is who I saw initially. She did the nerve blocks and helped me come up with the idea for the nerve stimulator.<br /><br />Dr. Elborno is the one who did the actual surgery. They are associates...work out of the same office.<br /><br />You may be able to skip over seeing Dr. Suwan and just see Dr. Elborno, as I imagine he can do much of the same as what she can but remember that his interest is in surgery...which always make me a little wary. You never know if a surgeon is going to push for surgery when there may be a better, less invasive procedure available. That's why I sent to Dr. Suwan first.<br /><br />That's not to say Dr. Elborno is not an <b>excellent</b> surgeon...he is. He does some amazing things and has a credentials list a mile long.<br /><br />Good luck to you and your sister. If you have any questions, please let me know and I will do my best to answer them.Bannerhttps://www.blogger.com/profile/10411396685109840881noreply@blogger.comtag:blogger.com,1999:blog-6174710622317551984.post-81740462015684733002009-06-21T09:21:55.571-06:002009-06-21T09:21:55.571-06:00Nicole...sorry it took me so long to respond...I w...Nicole...sorry it took me so long to respond...I was traveling home over the last few days.<br /><br />Your pain doesn't sounds exactly similar to mine...mine was a very sharp constant pain BUT it sounds like you've gone through most of the stuff that I have gone through. Just because your pain is different doesn't mean nerve stimulation wouldn't work for you. So yours pulses, mine is sharp? It shouldn't matter, I wouldn't think.<br /><br />My suggestion would be to try to find a pain specialist or neurologist that does nerve blocks. If you get them done, and they relieve your pain, that might be a good solution. One injection lasts up to 6 months for some people. If it doesn't last, but does at least give you some initial relief (like mine only lasted a week), then you may be a good candidate for nerve stimulation.<br /><br />I understand your frustration about doctors...they truly don't understand headaches and how to treat them without throwing drugs at you. That was my biggest struggle over the years by far. I don't have a good tip for finding a good one except keep trying! I know that's not helpful but I've been to headaches specialists that were crap and didn't do anything more than the GPs or neuros I went to. You just have to take charge and tell yourself you WILL find a solution. I know that sounds preachy but it really is the truth.<br /><br />I'm sorry you suffer so much. it's a horrible way to live.Bannerhttps://www.blogger.com/profile/10411396685109840881noreply@blogger.comtag:blogger.com,1999:blog-6174710622317551984.post-73619372581115461532009-06-18T17:29:41.910-06:002009-06-18T17:29:41.910-06:00Hi,
Can you tell me which doctor you worked with o...Hi,<br />Can you tell me which doctor you worked with on this? Was it Elborno or Suwan? I would like to send my sister there for the stim trial.<br />Thanks also SO much for sharing your story. Finding relief to this kind of pain is/would be unbelievable!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6174710622317551984.post-27650861598526260582009-06-18T10:57:09.657-06:002009-06-18T10:57:09.657-06:00Hi Banner. I am glad you have found relief. I am i...Hi Banner. I am glad you have found relief. I am interested in knowing more about your headaches. I'm sure after 13 years you are probably tired of describing the type of pain. I am female age 32 and suffered from mild headaches less than a handfull of times a year until last August when I began to have a dull achy headache that never went away (NEVER) and it is punctuated by pulses. Sometimes they are several times a minute or just a few a day or once every couple of days. These pulses bring me to zombie mode. I forget what I was saying if I was talking, feel like I'll puke/pass out, feel like all the nerves in my head/scalp are stiff, my hair even feels like it hurts, etc. I have hypothesized a thousand reasons, seen 4 GPs, 3 neurologists had multiple MRI and CT scans that are all "normal" blood tests are normal, ... anyways I have tried many of the solutions you have including having 6 teeth pulled and considered some others. I have severe adverse reactions to meds like topomax, verapamil, maxalt and even NSAIDs hurt my stomach so much. Inderall(a high blood pressure med, even though I have always had perfect BP) seems to bring the pain down a bit if I take it every day but my BP is low and I feel like a dinosaur. Acupuncture seemed to really help a lot but it's not a solution. I occasionally have pea/marble size bumps under the skin to the sides of my spine at the hairline and seem to notice them more when the pain is worse. What other symptoms did you have with your headache? Does this sound familiar? I am at a loss and can not imagine dealing with this much longer, I started the thinking process about being better off dead back in November/ December. My docs have seemed to be retarded and helpless and no better than a drug dealer on the street pushing these crappy pills on me. I have spent endless hours searching and researching and this is only the second time I have come across nerve stimulation info. The other time was for treatment of trigemenal neuralgia. Anyways I am sorry to ramble on. I am frustrated and I get worked up when I have to deal with this subject but it is gret to see someone follow through on updates with treatment. Keep blogging!Nicolehttp://starshinegenesis.com/index_files/Page337.htmnoreply@blogger.com